Supporting People Living With Parkinson Disease in Central and South Texas
As a caregiver, you are providing a valued and invaluable service to your loved one. You didn’t ask for it, but suddenly or gradually, here you are.
Tools for Care Partners:
• Keep it upbeat. Be optimistic, keep it fun and don’t dwell in the negative.
• Care. You can’t always give, but you should always strive to care.
• Time. Take time for yourself. Get enough rest.
• Time out. Take a time out when you become frustrated or angry. Resist the temptation to say something you will regret. Keep your dialogue positive and constructive.
• Calendar. Aid with planning and scheduling. Post the calendar in an obvious place.
• Advocate. Study, research, and ask questions. Knowledge is power.
• Communicate. Keep the communication lines open with your loved one and the full medical/support team.
• Ride share. Caregivers must assist in organizing rides whenever feasible.
• Enable. Continue to encourage self-reliance and independence.
• Exercise. You both need it every day – whether together or apart.
The calendar & weather says summer is here, the high temperatures of the recent weeks and weeks to come are a sure sign it is going to be hot.
TIPS FOR STAYING COOL
Wear cool clothing: Dress in light-weight, light-colored, loose-fitting clothing, preferably of natural fabrics like cotton. Use hats and umbrellas outside. Parkinson’s patients are at a higher risk of melanoma, so cover up with light clothing and/or use sunscreen regularly. If you have not seen your dermatologist in a year or more, make an appointment for a skin check.
Drink plenty of fluids: Drink plenty of water and fruit or vegetable juice even if you don’t feel thirsty. No alcohol, coffee or tea. Seek medical help if you suspect dehydration.
Avoid direct sun: Stay indoors during the hottest hours, 11 a.m. to 4 p.m. If you want to be outside, make sure it’s during cooler hours and you are in the shade, on a covered porch, or under an umbrella.
Don’t forget the sunscreen.
“Hyperthermia: Too Hot for Your Health”
National Institute on Aging
As one of the goals of LSPS 2017 Denim & Diamond Gala Benefit, Lone Star Parkinson Society is proud to announce a boxing program for People with Parkinson’s in New Braunfels. More Than Boxing will start Monday March 12, 2018.++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++
NPF “Aware in Care” program and free kit
The National Parkinson Foundation (NPF) recently launched a national program, Aware in Care, which aims to help people with Parkinson’s disease get the best care possible during a hospital stay. In conjunction, NPF developed a free Aware in Care kit with tools and information to share with hospital staff during a planned or emergency hospital stay.